Tuesday, February 3, 2015

To the beat of his own rhythm, Ollie turns two!

Literally beating to his own very unique and beautiful heart rhythm, our precious Ollie turns two today. This fragile yet strong heart of his is one of many reasons to celebrate the month of February. Ollie was born on the 6th, but we didn't sit down with his team of cardiologists until the early morning of the 7th. The reason I am bringing this up is February 7-14 is Cogenital Heart Defect awareness week (wear red for Ollie and his heart buddies). The morning of the 7th, I stumbled to the conference room in my hot pink sweat pants and lime green hoodie...yikes! Jason and I looked like walking zombies. We knew something was wrong with Ollie's heart, but we didn't know Ollie would have such unique and unknowledgable heart defects. The team of cardiologist drew diagrams and explained to us that our little man's needed to be "fixed". I can remember immediately leaving the conference room to be by Ollie's side. It was there that I had Coldplay's- Fix You song running through my mind...
"And high up above or down below
When you're too in love to let it go
But if you never try you'll never know
Just what you're worth
Lights will guide you home
And ignite your bones
And I will try to fix you"...
Ollie's heart journey has been by far the toughest. The unknowing is a tough pill to swallow. 

I am rambling because I can't believe my baby is 2! Ollie's personality has really evolved over the past year. He is seriously the most easy going child I have ever known. His best buddy is Owen and he adores cuddling with Baby (our crazy, lazy dog). Some days are down right hard and overwhelming though Ollie has no issue cracking smile to part those gloomy clouds. His soul sparkles! He teaches us to be thankful...he shows us we are blessed! This boy and his big brother are the light of our lives! 

Ollie is working hard physically! He is close to sitting unassisted though this may not seem like a big deal to most, it's a huge achievement for him! Ollie is a crazy barrel roller, but he's still not the biggest fan of being on his belly. This boy is quite a stubborn little man! He is showing interest in playing with toys which completely melts my heart. Ollie is obsessed with Mickey Mouse! When he hears Mickey's voice an instant smile and giggle appear. Ollie has been doing hippotherapy (horse therapy) for almost 6 months. The combination of in home therapies and hippotherapy has made a huge difference in his advancements. I can't speak highly enough of all of his therapists. Our in home therapists have been with us for most of this journey and I would be lost without them. 

In March, we are taking our first family vacation to Florida. I know vacations are supposed to be stress free, but packing and planning for Ollie is nerve wracking! We have to plan out hospitals in case of an emergency and can they accommodate his needs is always a big question. We have to pack all of his medicals supplies and medical equipment. Not to mention, we have to still figure out a way to pack all of his frozen blended diet food. I know we are all super excited and nervous at the same time! It will be so good to slow down and take a break from a everyday routine at home and more importantly we can't wait to spend time with our family.

Ollie has some important appointments coming up this spring. We are going to check his heart function before we leave on spring break just to make sure there isn't a significant change. He was just fitted for his medical stroller. This is huge for outings with Ollie because in our normal stroller Jason or I would need to carry most of Ollie's bags and medical equipment. Plus, Ollie wasn't ever comfortable in it and would slouch. His new stroller was fitted to him personally and keeps him in midline. Ollie seems to really love it! Of course, we had to get some Ollie green on the stroller so he is styling! :)
In many ways these two years have flown by but other ways it feels like an eternity! I  want to enjoy my boys every waking second and never take for granted the time I share with them. Owen is growing up so quickly before my eyes that I forget that Ollie is much older than he may appear. As I always say....small, but mighty! :)