Thursday, March 28, 2013

Enough already...

After a couple of days on IV fluids and dextrose, the doctors gave the go on feeding Ollie. He had troubles sucking, swallowing, and breathing at the same time, so they determined the best way to feed him was through a nasal gastric tube. They tried to place the tube in his left nostril, but couldn't get it through the nasal passage. This is how we found out about his choanal atresia in his left nostril. After ENT came to examine Ollie, we found out his left nostril is completely blocked and his right is narrowed. The great news is this does not have to be operated on until the age of 4-6. :) The bad news was the only way to feed Ollie was through an oral gastric tube, which could only be used temporarily. Over the next few days, Jason and I contemplated the idea of having a gastric tube put directly into his stomach. A few more days went by and we knew the answer was to have the g tube put in. The next morning Ollie had an upper GI done to check the placement of his stomach. Jason and I had grabbed some lunch and chatted away about how excited we were to have our family together at home. Owen, Ollie's older brother, was waiting patiently at home to meet his baby brother. After lunch, we headed back up to see the little guy and two doctors were waiting on us. Once again, we were being hit with more bad news....Ollie's intestines were malrotated and his appendix was located on his left instead of the right side. The upper GI also showed three more issues with Ollie's heart. What was supposed to be a simple surgery turned way more complex! I thought in my head...enough already! I leaned over Ollie, looked over at the doctors and said, "Could there be anything else wrong in this four and a half pound baby?!?" I was so tired of taking 2 steps forward and 5 back. On February 20, Ollie had the Ladd's procedure and g tube placed. Surgery went great, but nothing prepares you as a parent to see your baby on a vent. When your baby is hurting, as a parent, you want nothing more than to take their pain away. Going through all of this with Ollie, I have learned that nothing can prepare you for the intense feelings that parenthood brings. One of these intense feelings is unconditional love, but stemming from this is the urge and obligation to protect.

Wednesday, March 27, 2013

My little superhero!

I will admit, I had fully accepted the issues going on with Ollie's heart, but I was not prepared to hear everything else....

The NICU team told us Ollie had coloboma of the iris in both of his eyes. Ollie has what looks like black key holes that go from the pupil all the way down through the iris. I tell him everyday that only superhero babies are born with these super cool looking eyes! :)

Later that day, opthalmology came to examine Ollie's eyes. The news was in...Ollie has clefts in his eyes where the eye didn't finish forming completely. As of right now, we know he will suffer from some vision issues, but to the extent is something we are unsure of. I can remember asking the the ophthalmologist, "So what is the potential for his eyesight....are you saying he could be blind?" We won't know the answer for awhile...

Adventures at Riley

We patiently waited while the NICU staff got Ollie all settled in. Ollie was having an echo done immediately, so Jason and I sat by Ollie's side with so many lingering questions. Jason and I grabbed a couple of hours of sleep while the NICU team gathered answers. Around 8 in the morning, we were taken to a conference room where a team of cardiologist explained exactly what was going on with Ollie's heart.

Ollie has a congenital heart defect known as tetralogy of fallot. He will have open heart surgery to repair his heart sometime between now and the age of 1. The bigger we can get him, the better off he will be!

Tuesday, March 26, 2013

Oliver Hayes makes a grand entrance...

Oliver Hayes Fruits was born on February 6, 2013 at 12:45 in the afternoon. Jason and I fell in love again with another precious baby boy! It was a moment of overwhelming joy and feeling so blessed for everything God had gratefully given to our family. We were oblivious to the journey that Ollie was about to take us on....

When I was around 32 weeks pregnant, we found out Ollie had an irregular heart beat, but we honestly thought the irregularity would correct itself after he was born. Shortly after Ollie was born, we discovered he had a heart murmur, but no red flags were being raised since many children are born with heart murmurs. Our wonderful doctor decided to order a few tests (xray, echo, ekg) just to be on the safe side. In the mean time, Ollie wanted no part of these orders, so he started desating. All I can remember is having this nagging feeling that something wasn't right...motherly instinct, I definitely think so. We waited for Ollie's return from his tests, but instead our nurse came into our room and told us Ollie was having troubles with desating. They took us to the room that Ollie was hanging out in while we waited for the test results. The doctors explained to us that Ollie had multiple issues with his heart and we would be headed to NICU at Riley. Needless to say, by this point I was an emotional mess and just wanting answers as to what exactly was wrong with my baby. Around midnight, we were headed to Riley.......I can honestly say seeing our 10 hour old baby being loaded onto a lifeline stretcher was one of the most heart-wrenching experiences I have ever had.